I have decided to enter the blogging world to keep family and friends updated on our journey. I have found strength in others' blogs about their Dandy-Walker experience, and I hope to help others.
Wednesday, July 20, 2011
Finally!
Sorry it's been a long time since our last update. Ian is doing well, or at least I think he is! We have been having trouble getting his second neurology appointment scheduled due to Dr. P's very limited schedule. I have been calling and trying to get an appointment scheduled for over 3 weeks; it's been very frustrating. Finally, someone called today to schedule him to see a different pediatric neurologist on August 2, at 4:40. Of course that's my first day back to work. I have inservice that day and will be at a conference, but we finish at 3:00, so I should be able to make it to the appointment with them. I also contacted Early Intervention just as a precaution; it can't hurt, that's for sure. Marilynn is coming on Friday to start the process, but she said that Ian qualifies no matter what because of his diagnosis. She also told me that she was recently contacted by another family in our county with an infant with DWS. She said she would get us connected. She believes that the other baby has some other syndromes along with Dandy Walker. It is very rare to have Dandy Walker alone it seems. There is so much to learn about this syndrome. We celebrated Ian's christening this past weekend. You can imagine what was going through my mind as I watched my beautiful baby boy get baptized. Ally continues to be a great big sister. The other day she noticed that he looked bigger in his car seat and she said, "Mommy! Baby brother is bigger now! Now can he play with me?" They both melt my heart. We have seen lots of smiles from Ian, but I don't think they are real smiles just yet! I'll let you know how it goes with EI. Until then!
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