I have decided to enter the blogging world to keep family and friends updated on our journey. I have found strength in others' blogs about their Dandy-Walker experience, and I hope to help others.
Thursday, May 24, 2018
Wow! I can not believe I’ve let this much time pass since updating. Let’s just say better late than never. Ian turned 7 today! He is finishing first grade next week. We just got results of an end of year assessment today and he rocked all areas! He’s reading and writing and thinking critically. His imagination blows me away. He plays baseball and has been making some great plays at second base. I love watching him play and he puts his whole heart into it. He has also started performing and this summer he will fly as Michael Darling in a production of Peter Pan! Ian is an emotional little boy, but so far it hasn’t been anything we can’t handle. I recently spoke to a mom of a little girl with DWV and she is wondering if her child’s strong emotional responses is connected to her Dandy-Walker variant. It’s definitely interesting and something to look into for sure. If you’ve stumbled upon this blog because you are facing the unknown of a dandy walker diagnosis, you aren’t alone. Sorry again for letting the blog slip. I’ll try to update a couple of times a year. The birthday boy is going to blow out his candles soon! We are so blessed.